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When Do Choices Become Scams?

by Jeanne Jones, An Open Letter to Health Care Policymakers

 
January 1, 2004    

Dear Mr. or Ms. Health Care Policymaker:  

I am listening carefully as you explain why you supported the recently-passed Medicare Reform legislation.  I am trying to look into the future through your eyes and with your leadership and see the long-range benefits for older people.  I’m attempting to look at the big picture, but, frankly, I’m still reeling from the enormity of the little picture.  Because that little picture involves my 92-year old mother.   

You see, she fell on December 3rd and broke her knee.  She is insured by Preferred Care Gold.  They refused to admit her to a rehabilitation facility.  The rule is that a three-day hospital stay must precede admission into a rehab facility, so she was admitted into the hospital.  This was after two days of waiting – one night in emergency and another full day in the orthopedic unit waiting for someone to accept her.  She was finally admitted into the hospital at 6:00 pm on Thursday, December 4th.  On Friday morning at 11:00 am , she was notified by Preferred Care Gold that she needed to be out of the hospital by midnight .  That night.  She was in a cast from her ankle to her groin, she had had laser surgery for macular degeneration on December 3rd, she could hardly see, she is incontinent and needed help to go to the bathroom, and her insurance carrier said to get out by midnight .  The caseworker called unsuccessfully all afternoon to find a rehab unit or a nursing home that would accept her.  Since it was unsafe to discharge her, we left her at the hospital for the weekend and brought her home on Monday.  The Visiting Nurse Service came to her home on Monday and refused to accept her as a client saying it was unsafe for her to be there.   

The hospital could not keep her because Preferred Care Gold said she was not sick enough to be hospitalized.  The Visiting Nurse Service refused to accept the minimal 6 hours of home health aide/occupational and physical therapy that Preferred Care Gold had approved, saying she was too sick to be home.  Various family members stayed with her 24 hours a day until we could locate an adult home that would provide supervision -- at private pay -- which my mother cannot afford.  

Meanwhile, on local television the colorful, warm and caring advertisements encourage older people to join Preferred Care Gold.  They even offer an alternative plan with lower premiums.  Of course, if you are hospitalized you will need to pay the first $300 (estimate) out of pocket, but the premiums will be much cheaper and that is very appealing to older people on a fixed income.  My mother receives such offers and options on a regular basis, which only adds to her confusion and anxiety.  (Did I mention that she is also under care for dementia?)   

I have talked to many health professionals who tell me they try to discourage their clients/patients from enrolling in Preferred Care Gold but the advertisements are so comforting that older people sign up, trusting they will be taken care of.   

I hear the word “choices” being toted as one of the advantages of the Medicare Reform legislation -- that older people will have “choices.”  Such choices for older people are very close to SCAMS.  Without a knowledgeable family member monitoring the mail and finances, much damage can, and does, take place.   

My mother is lucky.  I worked in the aging field for twenty years.  I knew what was right and wrong.  I appealed.  Preferred Care Gold’s decision was overturned.   Your parent is also lucky, Mr. Health Care Policymaker, because he has you.  You will see to it that the system works for your mother or father.  The majority of older people do not have you or me to protect them or make appropriate “choices.’  

At this point, I cannot see the long-term benefits of the Medicare Reform legislation.  I don’t even know what it includes or excludes.  Again, the majority of people do not.  I can only see my 92-year old mother putting all of her energy into just staying alive and overhearing her sobbing on the other side of the hospital curtain that she is such a burden but she doesn’t know what to do.  Do you know what I mean?  What “choices” does she really have?  

Can you, Mr. Health Care Policymaker, do something to prevent CHOICES from becoming SCAMS?

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