Let
me acknowledge that perhaps not everyone
wants to settle down in a comfy chair with a
glass of wine, a purring cat, and 22 very
personal essays about death and dying. My
daughter has taken to asking me whether I
wouldn’t rather read — or write — about
puppies and kittens.
But a new anthology called “At the
End of Life: True Stories About How We Die”
contains some truly gripping narratives that
illuminate a hard truth about death in our
culture: it is always so complicated, so
much thornier than we think. A good death
appears to require as much effort and
commitment, from many parties, as a good
life. And it happens much less often.
Lots of different kinds of people
weigh in here: social workers, doctors and
nurses, family members, hospice staff, a 911
dispatcher. A Houston gastroenterologist
remembers the first time a grieving family
asked her to turn off the ventilator in an
intensive care unit. A leukemia specialist
agrees to administer a third round of
chemotherapy to a man who desperately wants
to live, though some of the doctors’
colleagues believe he should refuse this
painful and likely futile treatment. Not all
the dying are elderly: a mother recalls
every step of her decision to donate her
19-year-old daughter’s organs after a fatal
horseback riding accident.
Conflict seems almost endemic in
these final weeks and months. A very elderly
man accedes to a colostomy he doesn’t want;
a specialist overrules an intern trying to
keep her patient from being intubated
against his clear wishes. Perhaps the
authors, in seeking drama as writers will,
give short shrift to those people who
actually do call hospice and die quietly at
home with their families. As I read “At the
End of Life,” I was glad I had known and
seen people (including my mother) who
managed that.
But the accounts in the book are
probably reflective of reality, given what
we know about how many people die in their
homes — 19 percent, according to the most
recent statistics from the Centers for
Disease Control and Prevention, though the
percentage is climbing. And reality is what
“At the End of Life,” the first book
published by the journal Creative
Nonfiction, delivers.
Its authors, and editor Lee
Gutkind, deserve credit for being
unsparingly honest about doctoring, about
decision-making, about their own ambivalent
emotions. They have a lot to teach us.