Caring for Elderly Parents
Catches Many Unprepared
By
Christine Dugas, USA Today
March 25, 2012
Julie
Baldocchi cares for her aging mother,
Josephine Baldocchi, 83, with the help of
home health care workers such as Mere
Seini, in back. By Jessica B. Lifland, for
USA TODAY
Last July, Julie Baldocchi's
mother had a massive stroke and was
paralyzed. Baldocchi suddenly had to
become a family caregiver, something
that she wasn't prepared for.
"I was flying
by the seat of my pants," says Baldocchi, an
employment specialist in San Francisco. Both
of her parents are 83, and she knew her father
couldn't handle her mother's care.
The hospital recommended putting her mother in
a nursing home. Baldocchi wasn't willing to do
that. But moving her back into her parents'
home created other problems.
Baldocchi, 48, is married and lives about a
mile away from her parents. She has a
full-time job and has back problems that make
it difficult for her to lift her mother. "I
couldn't do it all," she says. "But I didn't
even know how to find help."
With help from the Family Caregiver Alliance,
she eventually hired a live-in caregiver. "But
even if you plan intellectually and legally,
you're never ready for the emotional impact,"
Baldocchi says. In the first two months after
her mother's stroke, she lost about 30 pounds
as stress mounted.
More than 42 million Americans provide family
caregiving for an adult who needs help with
daily activities, according to a 2009 survey
by the AARP. An additional 61.6 million
provided at least some care during the year.
And many are unprepared.
Starting with
the paperwork
While many parents lack an advance care
directive, it's the most basic and important
step they can take. The directive includes
several parts, including: a durable power of
attorney, which gives someone legal authority
to make financial decisions on another's
behalf; a health care proxy is similar to the
power of attorney, except it allows someone to
make decisions regarding medical treatment;
and a living will outlines instructions for
end-of-life care. (For example, parents can
say if they want to be kept alive by
artificial measures.)
"It's invaluable for the kids, because it's
hard to make those decisions for a parent,"
says Jennifer Cona, an elder-law attorney at
Genser Dubow Genser & Cona in Melville,
N.Y.
An advance care directive is the first line of
defense if a situation arises, says Kathleen
Kelly, executive director of the Family
Caregiver Alliance, which supports and
educates caregivers.
Without an advance directive, the family will
have to petition the court to be appointed the
parent's legal guardian, says AgingCare.com.
It's important for families to talk about
long-term care so the adult children know
their parents' preferences, wishes and goals,
says Lynn Feinberg, a caregiving expert at
AARP. But it's not an easy conversation.
Elderly parents are sometimes suspicious of
their children's financial motives, says Susan
John, a financial planner at Financial Focus
in Wolfeboro, N.H. One client asked John to
hold a family meeting because they needed an
intermediary to talk about financial issues,
she says.
And when there are many siblings, the family
decisions can become a three-ring circus with
much acrimony, says Ann-Margaret Carrozza, an
elder-law attorney in Glen Cove, N.Y.
Families who need information and help sorting
out disagreements can call on elder-law
attorneys, financial planners, geriatric care
managers, and caregiver support groups. In
February, AARP said it will offer its members
a new caregiving support service through
financial services firm Genworth.
Navigating the long-term care system
Many families are unprepared for quick
decisions, especially when they find out that
Medicare doesn't pay for long-term care,
Feinberg says.
The median cost of a year in a private room at
a nursing home in 2011 was $77,745, according
to Genworth. And only those who have spent
most of their assets can qualify for Medicaid
to pay for the nursing home.
Assisted living is another option. Residents
can have their own apartment to maintain some
independence. But the facilities generally
provide personal care services, such as meals,
housekeeping and assistance with activities.
Still, it's not cheap: The national median
cost in 2011 was $39,135, according to
Genworth. Assisted living isn't covered by
Medicaid.
If they have a choice, at least 90% of elderly
parents prefer to stay at home as long as they
can, according to AARP research.
But if the parents can no longer safely live
at home, it can be hard for children to move
them into an adult care facility.
There may be another option. Sometimes the
home can be modified so a parent can stay
there. For example, Baldocchi put in a chair
lift for her mother. She also arranged for a
home caregiver.
The job of
family caregivers
Family caregivers take over many
responsibilities. One might manage a parent's
finances, while another sibling will take the
parent to doctors' appointments and shopping.
Those who move in with a parent take on a
significant and sustained burden of care.
Jan Walker moved into her mother's home in
Leesburg, Fla. After her mother, who is 83,
had fallen, she wasn't able to get around as
well.
Walker, 55, has three brothers. But she is the
only daughter, is divorced and has no
children. "I always knew that this was the
role that I would have, and I guess my mind
was prepared for it," says Walker, who now is
a full-time caregiver and works from home as a
tutorial instructor for a digital scrapbooking
website.
"When you get into the trenches, it's
literally baptism by fire," she says. "New
things come up. It's not just about advance
planning for finances or medical care. It's
everything," she says.
Caregivers need to also watch their own
health. "There is such a thing as caregiver
burnout," Cona says. Among female caregivers
50 and older, 20% reported symptoms of
depression, according to a 2010 study on
working caregivers by MetLife.
"It's a hard job," Walker says. "But most
worthwhile things are hard. She was always
there for me when I needed a helping hand.
It's only natural that I be here for her now."
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