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Some related articles : Survey on Americans' Views of Nursing Homes - Global Action on Aging |
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Old Age in Brave New Settings
You enter Levindale Hebrew Geriatric Center in Baltimore to the sound of chirping birds. Sunlight streams through large windows and, across a courtyard, pansies and daffodils surround a small greenhouse. A black cat stalks down a corridor, looking as if it owned the place. Your grandmother's nursing home was nothing like this. Like other homes that subscribe to a philosophy called the Eden Alternative, Levindale uses plants, pets and regular interaction with children to enliven and give meaning to the lives of frail elderly residents. "I think we can get people to live a lot longer [this way] rather than just sitting around waiting to die," says Mildred Hoffman, 81, a resident since last year. Hoffman, who uses a wheelchair, writes for the monthly Levindale paper, reads stories to youngsters at the day care center across the parking lot and joins group outings to Loyola College, the state fair and a bowling alley. When, that is, she's not gardening -- carts filled with soil give residents with limited mobility the chance to dig in the dirt. "We planted those," Hoffman says, pointing to pots of bright yellow chrysanthemums. Aloe, ferns and philodendron are planted by residents, more than 80 percent of whom have dementia. Eden is not alone in bringing innovations to nursing homes. Around the country, a handful of daring approaches share a common goal: to put the "home" into nursing home and scrap the hospital (some say prison) model. The pioneering homes, which offer services at roughly the same cost as traditional facilities, judge their performance not only on medical outcomes, such as fewer bedsores or falls, but on whether nursing home life is a pleasant, even vibrant, experience. Hallmarks of these facilities include less institutional design, greater resident choice in how they spend their days, nursing assistants empowered to make more decisions and strengthened relationships between residents and staff. Innovators profess no small ambitions. "Our mission is to advocate and facilitate deep system change and transformation in the culture of aging," says Rosemarie Fagan, executive director of the Pioneer Network, a coalition of providers, family members and others founded in 1997 to help reinvent nursing homes. "The nursing home is a microcosm of our society and our values. It really mirrors . . . who we are." With 1.5 million people living in the nation's 17,000 nursing homes and an estimated 40 percent of Americans expected to spend some time there in the future, according to University of North Carolina researcher Philip D. Sloane, the demand for improvement is strong. "Whenever you have a [place] that's viewed as so bad people say they would rather be dead than be in one, you have a problem," says Sloane. Passage in 1987 of the Nursing Home Reform Act -- which includes a 10-point Resident's Bill of Rights (such as the right to be treated with dignity and to exercise self-determination) -- prompted industry changes, such as a reduction in the use of physical restraints. In 1998, the Health Care Financing Administration announced the Nursing Home Initiative, aimed at addressing persistent problems. What's needed now, say many in the field, is not more regulations but tougher enforcement -- and a change of mind-set. In the old medical model, the goal was to keep residents fed, dressed and bathed as efficiently as possible. "They might be miserable, embarrassed or cold, they may have the food forced down them, but we would have accomplished our goal," says Sloane. "But if your goal is for them to have a good experience, we approach it differently. Maybe we won't bathe them as often or maybe they won't have exactly the right diet, but they'll be happier." What may help the program catch on is this: Breaking the industry mold may make good business sense, at least in the long term. For example, at Levindale, the average daily occupancy rate jumped some 10 points to its current 98 percent after implementation of the Eden Alternative. The higher rate, says Levindale president Ron Rothstein, has helped offset renovation and other costs associated with the changeover. Patient Choice It may sound reasonable, but it hasn't caught on in a big way yet: Fagan estimates that fewer than 1 percent of nursing homes have embarked on the kind of transformation espoused by the Pioneer Network. One nursing home implementing such an approach is Providence Mount St. Vincent in Seattle. In 1991, when the home needed remodeling, its leaders decided to turn it into a facility based on "resident-directed care." The home was reconfigured into "neighborhoods" of two dozen residents each, with a new on-site day care center for children of staff and others in the community. "Residents are now at the top of the organization chart," says administrator Charlene Boyd, a Pioneer Network founder. "We got rid of most of the middle management and decentralized food service, laundry and housekeeping." Staff members pitch in and help residents with such tasks as getting a cup of coffee, doing a load of laundry or simply playing cards and talking. "The entire building feels like a neighborhood in some ways, with pets and little kids coming and going," says Sandra Twist, whose mother, Meredith Groat, is a resident there. "People are in a variety of settings -- in their room watching TV or reading or out in the open area near the kitchen which is nicely lit with round tables. Some [residents] are pulled up to the nurses station chatting. On Mom's unit there's a solarium. It's got a computer for people to check their e-mail. Another floor has a nicely appointed library, like an old gentleman's club. Another has an aviary." This is the third nursing home her mother has tried. One "was horrible," and "smelled bad," says Twist. Another looked nice but was poorly staffed. Mount St. Vincent, though, "is not driven by a warehousing approach," says Twist. "I like the whole resident choice philosophy." Being able to decide when to go to bed or what to eat is especially important for people like her mother, she says, whose choices are limited by chronic disease. Other innovators have seized on the same concept. "Why should [nursing home residents] lose their rights?" asks Eric Haider, CEO of Crestview Nursing Home in Bethany, Mo., who has developed a model he calls the Ideal Nursing Home. "If they have a physical or mental problem, it doesn't mean they have lost who they were. They are good citizens. They fought in our wars, built our bridges and highways. Now they're in the nursing home. It's our job to give them the best -- not by bossing them around, but by simply asking them what they want and honoring their desires." At Crestview, this means giving residents the same choices the rest of us take for granted. Want to go fishing? A pond is nearby. You'd like to buy a gift for your granddaughter who's coming to visit? A staff member will drive you to the mall. Got a hankering for pizza, but it's not on today's menu? "The typical [nursing home] answer is, 'We don't have pizza,' " says Haider. "The answer at Crestview is, 'Would you like to go to Pizza Hut, or do you want us to go and bring it back?' " This first-class service is not reserved for an elite group, but is offered to every resident, the majority of whom, as in most nursing homes, are low-income people on Medicaid with various levels of dementia. Crestview charges $79 a day -- just below the middle range nationally of $80 to $150, depending on region, type of facility and level of care. One area of savings is in medical supplies. Out of 154 residents, only three wear diapers, down from 53 before Haider took over. That change amounts to a $6,500 annual savings. "We have teams and keep the same staff [assignments]," explains Haider. "They get to know the residents and take them to the bathroom when they need it." Building Community In El Sobrante, Calif., Barry Barkan, CEO of the Live Oak Living Center and another Pioneer Network founder, developed a model he calls the "regenerative" nursing home. "What we have done is to create a culture that's based on the simple belief that those in long-term care are the elders of our people," he says. "They're growing, learning, developing, and they deserve respect and honor. They still have a birthright to joy and pleasure -- and they have work to do, which is to formulate a legacy of their past life experiences for future generations." The heart of the Live Oak program is a daily community meeting, a combination consciousness-raising session, songfest and news exchange. "It's emotional, it's intellectual, it's spiritual and it builds connections between people," says Barkan. "It's amazing how people [with diminished cognition] participate in discussions of world events." Residents with dementia still have opinions on everything from Monica Lewinsky to cloning and terrorism, he says. They even wrote a song about their rights, sung to "The Battle Hymn of the Republic." One satisfied resident is Verda Mason, 79, who grew up picking cotton in Monroe, La., and has lived at Live Oak for two years. "Everyone is so friendly and kind," she says in a phone interview. "I can't see and I can't walk, but I do enjoy my place here. At the meetings, I'm the one who gives the song and the scripture." The community-building effort has another benefit. "It's a very joyful environment, with an enormous amount of emphasis on multicultural harmony," says Barkan. The result: low staff turnover -- less than 20 percent per year. Staff Empowerment Nationally, annual staff turnover among certified nursing assistants (CNAs) -- nurses' aides who are a nursing home's frontline caregivers -- is more than 100 percent. Low wages, difficult working conditions, little respect and no chance for advancement give caregivers little reason to invest years in their careers. Unless nursing home managers can staunch the outward flow of their labor force, residents are unlikely to feel part of a stable, caring community. "We know through studies that the happier [care providers] are, the better the care is," says Sheryl Zimmerman, co-director with Sloane of North Carolina's Program on Aging, Disability and Long-Term Care. "The biggest problem has to do with [nursing assistants'] not feeling there's room for growth or being empowered." At Wellspring Innovation Solutions, an association of 11 nonprofit nursing homes in Wisconsin, interdisciplinary teams of nurses, aides, housekeeping staff and dietary workers attend off-site training retreats, led by a geriatric nurse practitioner, to learn best clinical practices for behavior management, nutrition and other types of patient care. Managers are taught to be coaches and mentors of staff, rather than authority figures. Improvements in care are measured and posted for everyone to see. "Before, they didn't push education for [aides] or housekeeping [staff]," says Mary Jo Westphal, certified nursing assistant/care delivery specialist at Good Shepherd, a Wellspring home. "Nurses would talk among themselves about a resident and never share information or clue us in. Now the whole staff learns things." This open approach has even affected lunch breaks, with staff members mingling with each other far more, says Westphal, who drives 42 miles round trip to work there rather than at her local nursing home. Robyn Stone, director of the Institute for the Future of Aging Services at the American Association of Homes and Services for the Aging, a trade group for nonprofit homes, conducted a recent study of the Wellspring approach and found that by many measures Wellspring homes outperformed others in the state. Wellspring not only had better staff retention rates than other homes; its caregivers also used restraints less frequently, identified bedsores earlier and had better procedures to help with incontinence. "We found that it did not cost Wellspring facilities any more" than what it costs traditional state facilities to operate, adds Stone. The movement toward empowering both caregivers and residents is likely to get a new push from aging baby boomers anxious to make change for their parents and themselves, say many experts. "They're much stronger advocates," says the Pioneer Network's Fagan. "They're the ones saying, 'What do you mean Mom can't watch television in the middle of the night -- or have a glass of wine with dinner?' " Asked if she's optimistic about the pace of industry reform, Fagan laughs. "There are days when I wonder, 'Are we ever going to turn this around?' " she says. "But this movement is touching people in a very deep way to put the heart and soul back into this work. I'd put my money on it: People want this kind of change and will create it." FAIR USE NOTICE: This page contains copyrighted material the use of which has not been specifically authorized by the copyright owner. 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