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Advocates defend service for elderly, disabled care

By MARSHA SHULER

Capitol news bureau, July 18, 2003


Advocates for the elderly and disabled will fight state efforts to scrap a new program that guarantees in-home personal care services to residents who otherwise would live in nursing homes.

The state Department of Health and Hospitals went to federal court Wednesday to try to get out from under the requirement.

The personal-care attendant program is a key part of an agreement settling a federal lawsuit known as the Barthelemy case. The lawsuit alleges lack of home and community care options for the state's elderly and disabled.

More than 90 percent of the state's Medicaid long-term care dollars are spent on nursing home care -- some $600 million annually.

"We are definitely going to take the next step to enforce the settlement," said Lois Simpson, executive director of The Advocacy Center, which takes up the cause of the rights of the elderly.

Advocacy Center attorneys filed the Barthelemy lawsuit.

"We are going back into court. We can't lose anything. I frankly don't think we are going to lose," Simpson said.

She said plaintiffs' attorneys will tell the court that the DHH proposal to revise the settlement agreement is unacceptable because it doesn't guarantee access to home and community-based services.

DHH submitted the revised plan at the direction of the Louisiana Legislature, which doesn't want to launch the open-ended personal care attendant program.

The PCA program offers residents in-home help with such things as bathing, dressing and eating.

DHH asked the federal court and plaintiffs to agree to use the $28.2 million appropriated to expand the current elderly and disabled adult program to serve another 2,000 people instead of embarking on the PCA option.

The current program, which would offer a more varied range of services, including PCAs, would be capped instead of available to all who need help and qualify.

"Basically, we want to continue the personal care option part of our agreement that DHH agreed was valuable to a lot of people and offer an intermediate level of services to people who need them," Simpson said.

The DHH proposal would lead to limitations on services and "sets the whole state up for a waiting list," Simpson said.

Under the settlement agreement, anyone who qualified for in-home personal-care services would get them, Simpson said.


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